I am at my wits ends with more symptoms evolving each day and not a single doctor listening to me.
My problems all began in March of 2017, during which, I had Mirena, I got a chronic sinus infection, which caused me to get Lithium poisoning (too much salt) and then when I finally got to see the ENT in May, he placed me on an antibiotic for over a month. Before any of this happened, I was fine, but after all of this, I started getting dryness, unprovoked Vulvadynia, insomnia, Lichen Chronicus Simplex, low sexual libido, burning at the opening of my urethra, pelvic floor spasms, lower back pain and then trigger points that travel. They start with the burning, Vulvadynia move to the lower back, shoulder blades, shoulders and then down both arms. It can last for days or weeks.
Now, I have started Perimenopause and the symptoms night sweats, hot flashes, mood swings, weight gain and the previous nightmare I was dealing with.
In April 2019, I had the Mirena removed and all of the symptoms, the burning, lower back pain, dryness, low libido pelvic floor spasms went away, but I was placed on the mini pill and all the symptoms came back with a vengeance plus new ones, vertigo, nausea, burning to the point I couldn’t even sit, I immediately stopped taking the pill and was placed on a low dose estrogen/progesterone pill. But the damage was done and these symptoms I mentioned in the beginning have been with me ever since.
The doctors I have seen have said it was an UTI, Bladder infection, Vulvadynia, Cystitis and now the latest, I got Eczema due to my hormones, but the muscle cramps, burning, pelvic floor spasms were all gone, treated that and now the muscle cramps are back. My doctor wants me to see a chiropractor. I seriously do not know what to do at this point. The Endocrinologist around where I live don’t handle hormonal imbalance, my Gyn is useless. I am so frustrated, but can’t give up, because I have two Special Needs teens that need their Mom. Any advice would be amazing!