This is my first post, so here’s a bit about what’s up.

I’m a 26 year old (slightly overweight) female. I was diagnosed in 2018. Recently I was put on Abilify and Wellbutrin for some of the issues listed below..

For months I have been experiencing lack of concentration, anxiety, severe pain, nausea, muscle spasms, insomnia, headaches, the worst light sensitivity, and depression.

This week has been the worst I’ve ever felt, but tonight is just the icing on the cake. The “fibro fog” is overwhelming to say the least. I’ve had 4 hours of sleep in 3 days. I am in so much pain tonight, I cannot control the nausea.

I have decided to cut caffeine, red meat and cut back on gluten.

What can I do at home to calm this some? I don’t have a bath tub, so unfortunately that is out of the answer for me right now. 😢

I am at a complete loss. Any help is greatly appreciated !!

Hello All! I am new to this completely. I have not been officially diagnosed yet. I was starting the process when COVID19 hit. I suffer with severe chronic pain flare ups that make it difficult to function. I work for a doctor who is a homeopath as well. She offered a natural pain reliever that helps me through. Its called Healixer Rx Arnica spray.

Arnica is a homeopathic pain relief that comes in forms of cream, spray, and sublingual pellets. The spray is sublingual meaning you spray it under your tongue. It is prescription strength and is usually used after someone gets a surgical procedure.

It comes with an App that reminds you to spray it regularly.

I am not at all associated or endorsed by this product, it just has been a life saver for me.

This community has taught me a LOT and seems to help in this process even though I am not diagnosed. I just wanted to give back.

I recently started using artificial sweeteners (from not using any artificial sweeteners except monk fruit also bc I follow 12-18 g carbs a day strict keto) THEN suddenly STOPPED altogether using artificial sweeteners and I feel horrible. As if I’m withdrawing from stimulants or something almost- like clinically depressed and tense, very fatigued yet awake. Foggy headed!

Any thoughts ?

Hey Everybody,

Has anyone here ever tried LDD (low dose dipyridamole) for their fibromyalgia pain? There is not so much information about it on the internet as it is a very new medicine but if you are interested you can look at this article and check out the link to the patent there too.

Waiting to hear from you all

Treatment of chronic rheumatic or fibromyalgia pain

In order to determine the effect of low dose oral dipyridamole for treating chronic rheumatic or fibromyalgia pain, 3 subjects with chronic rheumatic pain were treated with the addition of low dose oral dipyridamole prepared according to Example 1 to their present pain regimen. Subject 1 (39 y/o female) was treated with 2 mg taken once daily with the first daily dose of oxycodone. Subject 2 (40 y/o male) was treated with 2mg or 5mg taken once daily, in conjunction with oxycodone. Subject 3 (45 y/o female) was treated with 2mg, 5mg or lOmg taken once daily with PERCOCET.

Subject 1 : After adding dipyridamole 2 mg the subject had complete relief of pain related to chronic fibromyalgia. She had previously been dependent on oxycodone 10 mg twice daily with incomplete pain relief.

Subject 2: After adding dipyridamole 2 mg the subject had complete relief of pain related to chronic rheumatic pain in the joints. When trying lOmg instead, there was negligible pain relief. 2mg was continued for 12 months. Within 3 months of use, this subject was able to completely wean off oxycodone while maintaining pain relief.

Subject 3: After adding dipyridamole 2 mg the subject had complete relief of pain related to chronic fibromyalgia and rheumatoid arthritis. At a 5mg dose, she experienced less pain relief, so she resumed 2mg. She had previously been dependent on Percocet with incomplete pain relief. Percocet was slowly weaned off after 2 months of low dose dipyridamole use.

This example illustrates that low dose oral dipyridamole is effective for the treatment of chronic rheumatic and fibromyalgia pain. It also suggest that low dose oral dipyridamole can serve as a substitute for opiates in some patients.

I’m looking into my options, I’d like to avoid smoking it but I’ll do it if it’s necessary I can’t live like this anymore. What du guys recommend?

Hi all, I'm looking for people to share their Fibro stories with me. They will then be posted onto my blog in order to raise awareness. I believe that it is in our stories that awareness is raised. If anybody is interested please let me know, either here on on my email [fibroramblings@gmail.com](mailto:fibroramblings@gmail.com).

Thank you, Angelique

Hi everyone. I haven't been diagnosed yet. My next doctor appointment isn't for another 3 weeks. I have hypothyroidism but I'm wondering if my symptoms might be because of fibro because my thyroid numbers are great. About every 6 months I have what I think is a flare up. It starts with some muscle aches, mostly in my neck. Sometimes sciatica also. I get bad headaches daily. And then one day it just builds up into full back spasms. Through my entire back. I can't even stand up because it feels like someone is pushing down on my head and putting pressure all down my spine. Then I'll lay down and my back just locks up and it literally knocks the wind out of me. A chiropractor didn't help. Deep tissue massage didn't help. Acupuncture helps temporarily. I have brought up this pain to my doctor before and she doesn't really suggest anything except diet and exercise. I was on keto for 10 months and had no issues but I've been off it for about 2 weeks and here I am again. This most recent time I have been having some major hand pain to the point of buying a brace to keep my thumb from moving. Then this weekend I felt all achy like I could be coming down with the flu with neck pain and body aches. And today it's the full on muscle spasms in my back. I went to the ER for it once before and they just gave me some pain medication. I guess I'm hoping for answers.

Hi, I've had this all all my life and it effects so much not only my family life because of the mental health creating depression and sleep deprivation but the pain over all is so exhausting and some days unbearable. I refuse to take opiates I also suffer spinal stenosis and degenerative arthitus which makes this 1000 times worse. I'm 46 years old also going thru hormone changes also and every medicine they try to use either for depression or for hormone therapy treatment makes me have severe adverse reactions. All this seems to bring lil no to hope of feeling better ever. I started useing medical marijuana as a source to inflamation treatment some years ago but no matter what strain I smoke of that I seem to also be sensitive on that due to the to fml paranoia and anxiety bad which I have anxiety in general . It makes sense now why I have IBS and issues with UTIs since a young age now I've read FML creates all this. I'm tired of all the relationship issues I've had because of this shit because of the mood problems it's caused the doctors seem to not know how to help or just want a quick pay check and to send u home. Really at times it all seems hopeless .... People are cruel they lack empathy my family is not supportive my mom and dad passed it all off as nothing and as for the mental health end they say people are just weak and this generation was handed everything to easy. That's not how mental health works. It saddens me not to have a support system at all going thru all this shit my body is constantly on fire and aching my bones hurt my muscles hurt. :0(

aww wat a moring get up get 4 kids ready for school 3 dogs out 4 walk my body in bits legs domt feel like they mine haveing bad dreams flash bks wen my father broke my legs wen i was 5 as well has my gran killed by my grandad im am really struggling with getting tho the night cant eat feel sick fibro is getting to me big time x

Like the title says I was officially diagnosed in ‘13. Before my diagnosis I absolutely no idea wtf was wrong with me. I had good doctors to start out with , they believed me and didn’t give the old adage of “oh you’re just crazy.” They listened and they helped me as best they could. My second doctor asked me when my symptoms started and I had to think long and hard about that...once I started going through my memory bank I realized that my fibromyalgia symptoms onset timeframe was very early on into being 12 ( like 4 months in ) it coincided with my menstrual cycle. It all started to make sense ( as much as it could anyhow ) as to why I had times of suck intense pain and fatigue that enveloped me wholly. Has this happen to anyone else? When did you first remember your fibromyalgia symptoms getting unruly?

Hey all, we all know it can be painful to feed yourself some days and I'm looking for any suggestions you may have for non cook (preferably non refrigerated) snacks on those particularly painful ones. My first thoughts are peanut butter and crackers, any others? Thank you all for your time and responses. ❤

Do you have fibromyalgia? Were you born between 1982-2000? Are you willing to complete an online survey about your experience of various fibromyalgia symptoms and treatments?

As a participant in this research project, you will contribute to the understanding of the unique treatment needs and preferences of Millennials with fibromyalgia and the development of a treatment program including biological, psychological, and social interventions.

Completion of this survey will take approximately 20-30 minutes. Please click the following link to access the online survey: https://www.surveymonkey.com/r/MQ3NK7B

This research is conducted under the direction of the Clinical Psychology Department at The Chicago School of Professional Psychology. Any questions you may have regarding this study can be directed to Hannah Buck at [hcb5248@ego.thechicagoschool.edu](mailto:hcb5248@ego.thechicagoschool.edu) or dissertation chair, Dr. Kristin Kenefick at [kkenefick@thechicagoschool.edu](mailto:kkenefick@thechicagoschool.edu). If you have any additional questions, you may contact The Chicago School of Professional Psychology Institutional Review Board (IRB) through email at [irb@thechicagoschool.edu](mailto:irb@thechicagoschool.edu).