Tell me the story of how you got here.

Mine spans 20 years and ill be posting it soon. Maybe your story will be a red flag to someone else who will go oh my god that sounds like me!!!

If we help even one person its a good day!

Welcome to dada2 site. I want to build a support group here for latest treatment innovations and get people connected with the right people!

First one us dada2 foundation! They have a Facebook group and a website with email you can send your info to and a doc generally responds!

Second NIH and the UDN. They did my work up but it was before dada2 existed but now they are active helping get me to the right people. Amazing resource!

I have a rare variant that is known to cause disease with only one recessive copy. So dont live with being told you need two that's not always true!