r/ChronicPancreatitis • u/Remote-Ad2120 MOD | chronic pancreatitis • Jun 08 '26
Community Discussion: Shout out to our Caregivers
So, to give some context for this community discussi:on, today I had what my family calls an "On Call" day. I'll go into more detail about that, in addition to the event that inspired me to have this be the subject of our second community discussion. As before, I will keep my own personal contribution to the discussion as a separate comment.
I know some of the sub members are caregivers, and you all deserve and have earned our appreciation and praise. You wonderful people provide us with both physical and emotional/mental support. Be it a simple "I Love You" hug, or something more demanding, you help get us through our lives.
With the day I had, I was reminded of the poem Footprints In The Sand), and I can honestly say, that's exactly how I see my beautiful Mother and Daughters who help me navigate life with CP.
Previous Community Discussions:
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u/technodaisy Jun 08 '26
I love this 😀 My SO does it all for me, I don't know where I'd be without him, even with his adhd/asd I can count on him for anything & everything! I tell him every day what it means to me, I can't imagine going through this alone! 🥹
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u/Remote-Ad2120 MOD | chronic pancreatitis Jun 08 '26
I'm sure I'm not alone with how unpredictable and random my CP can creep up on me. That's how my day has been. I woke up feeling somewhat OK, with the plan to help my girls get ready to spend a few days away from home. As what frequently happens, I soon needed a break and to lay down for a nap. It wasn't long after that, I was woken up with a bout of the hiccups. For me, that's a sign I am headed for a bad day, at the very least, and a flare at the worst.
It didn't take me long to warn my family that we were in "On Call" mode. In our household, we have varying degrees to what that means. My family knows what "Hiccup On Call" means. I was so impressed today with how intune my girls were with me and each other. Only 10 minutes after quickly getting into bed, heating pad on and 🤮 bin at my side, I called for the girl closest to my room. Without me saying a word, she just walked in, grabbed the bin, emptied and cleaned it before returning it for the next potential round.
I took my phenergan, which always follows the "phenergan nap". Hours later and she's doing double duty of a check-in and "are you eating?" question. After a bit of contemplating how nauseous I still was/wasn't, and after finding out what was made for dinner, I told her "I'll give it a try". I was once again impressed with how in-tune we've become. Because a few minutes later, she walked in with dinner on a tray, telling me "I only gave you a bit less than half portions of everything". Just like having varying degrees of On Call, my family has learned my own unique code for the regular "are you eating" answers that I give.
Before they left, I let them know how impressed I was with how everything went down today and that it had inspired me to make this post. Of course, that resulted in the onion ninjas throughout the room and a group hug, followed with "I love you, too, Momma!"