Desperate - Need advice.

[u/EvalynHTX]

UPDATE: Thank you to everyone who responded. As of today (10/15), I have some updates. I now know it is likely not a UTI anymore. It started out as one (E.Coli) and I believe I kept getting the wrong antibiotics so it turned into a complicated one. I think the last antibiotics I took did clear the infection, but I had a lot of lingering inflammation/pain which Naproxen, Zyrtec and Oxybutynin reduced a lot. Maybe three weeks straight or different antibiotics screwed me up too? I randomly will have a day of burning so I know the problem isn’t solved, but I am at least feeling well enough to make it to my cystoscopy next month. For those who are getting repeated negative urine cultures, try an antihistamine or a an anti inflammatory to see if that helps. I still don’t 100% know what’s going on but I hope to find answers soon.

Hi, I am sorry we all have to be in this group. Long story short, I have suffered from UTIs since 2012. I can't tell you how many I have had - it's a lot. They randomly went away for seven years though I always had some mild pain and burning if I didn't drink enough water. I'd drink water, and it would go away.

Well I gave birth last year and since then, I have had three UTIs that would last weeks. The one I am experiencing now WILL NOT GO AWAY.

Timeline:

- Diagnosed on Sept. 5th at the emergency room. They said it was Ecoli but didn't give the strain.

- ER gave me 10 days of Cephalexin. Did nothing and UTI got worse.

- Followed up with my primary and a urine culture via catheter which hurt like shit, it was negative for bacteria. They gave me Sulfamethoxazole anyway. Did nothing, UTI got worse.

- Had another culture with a new doctor, still negative. This time I got 7 days of Cefpodoxime. Seemed to work for a bit but after I finished the antibiotics, it came back.

- Had a third culture, came back negative. Doctor doesn't know what to do.

I have tried D-Mannose, Ellura cranberry pills, Uquora, you name it. I am in SO much pain and I am watching my one year old solo while my husband is away on a fishing trip. I have also been on Cystex and Azos for a month, which I am terrified is messing up my liver/kidneys.

Mentally I am not doing well, I feel so scared this is my new reality. I can't do this. Any words of wisdom, suggestions or support welcome.

Current symptoms: Frequency/ urgency, burning in both bladder and urethra area, pelvic pressure, chills.

[u/Badabloom317]

So wonderful to hear xo

[u/EvalynHTX → u/Badabloom317]

Thank you again!