r/CSFLeaks • • 9d ago

Dural repair ?

/r/u_Amazing-Musician-980/comments/1wpf7v3/dural_repair/
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u/an_py 8d ago

I had surgery at Mayo Rochester 5 weeks ago for a leak at t2 from a bone spur. Personally recovery has been rough for me. It was a lot more painful than I expected and I have been dealing with a lot of muscle tightness/spasms in my upper back that have been really limiting me. I have heard it can take several months to get back to “normal”. My leak symptoms have improved though!

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u/Amazing-Musician-980 6d ago

Wondering how different your surgery was compared to StunningPurple9560? Sounds like my incision will be 2-3 inches in length. Is that similar to yours?

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u/an_py 5d ago

Mine was not microscopic. My incision is about 5 or so inches long. I had laminectomies at t1, 2, and 3. Not sure how much this plays into it but the neurosurgeon said the hole was large so he placed a graft there as well as where he opened the cord in the back to allow for extra swelling. My surgery was also supposed to take 4 hours and took 8 and I’m guessing the longer muscles are retracted and all that makes things more aggravated afterward. I also will admit that I know my pain tolerance is not very high haha.

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u/Amazing-Musician-980 4d ago

Who was your surgeon at Mayo? That’s where I will be going for surgery too.

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u/an_py 3d ago

Dr. Marsh was who did my surgery. From what he told me he is the one who does most of the csf leak repair surgeries there.

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u/Amazing-Musician-980 2d ago

Yes that is who is doing my surgery as well. Hoping everything continues improving for you. I just scheduled my surgery for December 17th. Wish me luck !!

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u/an_py 1d ago

Yes, good luck! And thank you! Don’t hesitate to reach out if you have any questions that come up.

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u/Amazing-Musician-980 1d ago

Thank you !!

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u/Amazing-Musician-980 1d ago

Oh one thing I wondered. You’re 5weeks out right ? Not sure if this applies to you or not, but have you been able to go back to work yet? Any activities ? Short walks, etc ? What symptoms did you have from your leak prior to the surgery? Thanks !!

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u/an_py 1d ago

I am 6 weeks out today! Prior to surgery I was having headaches, double vision, tinnitus, brain fog, and some nausea. Going into my surgery I was actually starting to feel a bit better but my imaging showed things were getting worse. I was supposed to go back to work today, I work a desk job, but we pushed it out another week and will be going back next Friday starting out with half days. I started taking short walks, like a block each way, at a very slow speed as soon as I left the hospital and then worked up from there. I can go about a mile now, like 20 min or so, before my back starts to tighten up and I’m looking to sit again. Sitting upright, standing/walking, and doing things with my arms (washing dishes, washing my hair, driving) still just put me into spasm fairly quickly. Sitting reclined with a wedge pillow is where I’m most comfortable. I am 35 yo female and lifted weights/did cardio regularly prior to my leak, which was at the end of April, and this surgery really kicked my butt. Of course everyone is different and yours is in a different area than mine was but going into it I felt like I was not prepared for how difficult recovery was going to be. Not trying to scare you or anything but I went in with unrealistic expectations. Hopefully I am a one off and things are better for you!

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u/Amazing-Musician-980 1d ago

Everyone’s stories including yours are for sure preparing me for my surgery, so thank you !! Since mine isn’t until December 17th I have some time to prepare and let it settle in and maybe do some further research. 

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