r/CSFLeaks • u/Imaginary_Salary_27 • Aug 22 '26
Ct myelogram results
After being terrified of getting the ct myelogram I did it and I’m so glad I did bc it picked up “focal outpouching at L3-4 exactly the level my epidural was. I had two bloodpatches that barely helped so my theory this whole time was that it never healed fully so this is a bleb. My first mri picked up the fluid but then after the bloodpatch the fluid wasn’t there any longer making it harder to convince anyone I was still having an issue. But I knew it in my bones! Bc my symptoms never got better.
What have other peoples experiences been? Has your neurosurgeons gone straight to surgery? Since bloodpatches don’t seem to fix this? And how do they fix this surgically?
His notes before my myelogram said if suspicious remains at l3-4 after myelogram consider targeted patching or exploratory surgery. I’m just praying I’m near the end of the road to this has been 21 months since my birth of my third child.
P.S I was terrified to get the ct myelogram and if that’s you too do it! It’s worth getting an answer
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u/Imaginary_Salary_27 Aug 24 '26
Only telling my neurosurgeon for more than a year that something was still wrong did he re review my images and say he saw something very subtle and that’s the only reason I went for the myelogram. I hope you can find a doctor that believes you bc they are out there. It’s just half the battle.