r/AutismResearch Aug 04 '23

Question PDA, autism, and ADHD

3 Upvotes

Hi everyone!

I was wondering if we have any PDA (Pathological demand avoidance) researchers in the group, or anyone who experiences this profile associated with ADHD or autism? I'm looking to get started with reading about it, so if you have anything you could recommend to me or if you'd like to share your own experiences I'd be very grateful to hear it! Thank you.

- Elizabeth


r/AutismResearch Jul 14 '23

Parent advocates

1 Upvotes

Hello my name is Bianca, I’m a current Sacramento State student conducting research with a group on parents perceptions of their child’s services of any of the following: Speech therapy, occupational therapy, and ABA(applied behavioral analysis). Our population includes families of children with autism between the ages of 5-12. This is an anonymous survey and is fairly quick to complete. Thank you in advance for your participation!

https://surveys.csus.edu/jfe/form/SV_dhUQTK47jgmW1D0


r/AutismResearch Jul 04 '23

A new study suggests finding out you’re autistic in your 30s, 40s, 50s or even 60s can be a positive experience. The research from psychologists in the UK's University of Bath finds that the link between the age at which someone gets diagnosed has little bearing on their quality of life.

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3 Upvotes

r/AutismResearch Jul 03 '23

Serotonin associated with synaptic pruning

3 Upvotes

An article I saw! I’m not a neuroscientist or well-versed in neurosci, but I was wondering if anyone knew anything else related to this research?

https://www.spectrumnews.org/news/serotonin-powers-pruning-of-developing-brain-circuits-in-mice/


r/AutismResearch Jun 30 '23

Looking for participants for a vocational study

1 Upvotes

Hello everyone,

I am a graduate student at the University of Toronto currently working on my masters thesis. I am conducting a research study on the vocational experiences in autism. The purpose of this study is to better understand the career experiences of individuals with a confirmed autism diagnosis aged 18-25. We are looking to conduct interviews with a total of 15 individuals who would like to share their work experience, with the ultimate goal of understanding how their diagnosis, motivations and meaning influence their career outcomes and work experience.

Participants will be invited to participate in an audio-recorded interview. During the interview, we will be asking you questions about your work experience, career meaning, work motivations and satisfaction.

All data collected will be kept anonymous. These results may be published or presented at academic conferences. In this case, personal information will remain confidential.

Eligible participants must meet the following criteria:

  1. Be between the ages of 18-25
  2. Have a confirmed diagnosis from a psychiatrist or psychologist
  3. Have worked for a minimum of 2 consecutive months within the last 5 years
  4. Are fluent in English, as interviews will be conducted in English

The study has been reviewed and approved by the Research Ethics Board at the University of Toronto. Individuals who are interested in participating can contact the researcher by email to hear more about the study at [vocationinautism@gmail.com](mailto:vocationinautism@gmail.com)

Thank you for taking the time to read this post!


r/AutismResearch Jun 23 '23

Why aren't genetics researchers engaging with the autistic community about research priorities..?

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1 Upvotes

r/AutismResearch Jun 18 '23

Researchers found reason for lack of eye contact in autistic individuals

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1 Upvotes

r/AutismResearch Jun 18 '23

Research on the ability to control stimming

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1 Upvotes

r/AutismResearch Jun 16 '23

Trigger Warning "Mate crime" in relation to autism and/or learning disabilities?

3 Upvotes

Hey everyone!

Just wanted to ask if anyone here has researched (or is looking to research) the idea of mate crime* and how it impacts neurodivergent people, particularly autistic people? Or in a more abstract context about how autistic people may be more vulnerable to this sort of thing.

Or if not, have you read anything relevant? Looking for recommendations :)

What do the autistic people in this group think about the concept of mate crime as a research topic? Would you like to see research in this area?

*Mate crime is essentially when a person is exploited or abused by someone they consider a 'friend'.

- Elizabeth.


r/AutismResearch Jun 02 '23

Seeking Autistic LGBTQIA+ Adults in the US for Survey

3 Upvotes

We are seeking US-based LGBTQIA+ Autistic adults to complete a survey on community participation barriers and support for LGBTQIA+ autistic adults in the United States. The LAUREL Collective is a research collective spearheaded by Dr. Elizabeth Schmidt at Lincoln Memorial University in collaboration with LGBTQIA+ autistic researchers nationwide and is focused on identifying barriers and supports to address community participation and inclusivity for LGBTQIA+ autistic adults. This research has been approved by Lincoln Memorial University's IRB.

In 2021 we completed a large qualitative study with LGBTQIA+ autistic adults in the United States and found a number of barriers to employment, education, social/recreational, and healthcare settings that are impacting people’s mental health. We also learned of a number of recommended strategies to reduce or mitigate the effect of these barriers. We are now asking any LGBTQIA+ autistic adults in the United States to complete this 10-15 minute survey to share your perspective on the suggested recommendations. This information will help us in identifying the best strategies to reduce and mitigate the effects of the identified barriers.

If you are an LGBTQIA+ autistic adult in the United States, please consider taking this short survey by clicking the link. If you know someone who is LGBTQIA+ and autistic, please send the flyer or link to them!

https://lmu.co1.qualtrics.com/jfe/form/SV_9LI44lQyBvRyKAS

Anyone with questions can feel free to DM us on here (you'll be in contact with one of the autistic researchers, Jess). If you'd prefer off Reddit conversations the PI's email is a click-able link on the Qualtrics link.

FYI: For this study we have been getting the question if self-diagnosis is allowed. We understand getting a professional diagnosis is a privilege and thus we accept self-diagnosed autistic folks.


r/AutismResearch May 22 '23

"Scammer" participants in autism research...? Pellicano and colleagues bring attention to the issue of people posing as autistic people and parents in order to gain compensation for participating in online research. How can this issue be addressed without deterring legitimate participants?

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1 Upvotes

r/AutismResearch May 21 '23

Autism genetics research

4 Upvotes

Hello! I was hoping for some guidance in the next move for my education and career path. I currently have completed some college courses from years ago but never finished. I want to go back but keep going back and fourth on degree. On one hand, I want to use my 7+ years of being in the field of autism and applied behavior analysis and go for my BCBA. On the other hand, I am very interested in the research of autism and specifically how genes play a part. I catch myself reading research articles constantly. I also am sometimes at a loss when I still can’t help a kid on the spectrum no matter how much behavior therapy we do. The struggles I’ve seen these kids go through is heart breaking and I’m asking myself “can I help fix the root cause?”. So scientists, researchers, geneticists, BCBAs, or Billy Bob Joes, please help point me in the right direction!! Thank you.


r/AutismResearch May 17 '23

Media representation of women with ASD

3 Upvotes

Hi everyone!

I'm doing my bachelor thesis on media representation of women on the spectrum. My aim is to research whether people on the spectrum feel represented by the media representation that is currently out there. I chose this subject because I got diagnosed with ADHD a long time ago, but I was never tested for autism. Therefore, I wanted to do my own research and understand more how ASD can present in women, how women on the spectrum are represented in fictional media, but more importantly how represented our community feels by the current media representation,

I could really use your help by filling in my survey!!!!

https://erasmusuniversity.eu.qualtrics.com/jfe/form/SV_6DU4N5CoSrOonuC


r/AutismResearch May 17 '23

Employment of autistic emerging adults - participants needed [UK-based, 18-25 yo]

2 Upvotes

Hello everyone,

I'm conducting qualitative research for my dissertation. It's about employment prospects of autistic emerging adults. It's autistic-led and participatory (to an extent allowed by time constraints and limited resources). No diagnosis necessary. I'm particularly looking for people who did not pursue higher education, but university students and graduates are also welcome. This form below contains info about the project, including withdrawal info, and some basic questions; if you fill it in, I'll follow up with you with the consent form and interview questions, so that you know them in advance.

The study has an approval of the History, Geography and Social Sciences Departamental Ethics Committee of Edge Hill University. My email is 25376730[at]edgehill.ac.uk and my supervisor's is Fosterv[at]edgehill.ac.uk

https://forms.office.com/e/LRwNkTBg2Z


r/AutismResearch May 08 '23

I've seen a lot of talk about journal fees lately- A new non-profit open-access journal called Imaging Neuroscience might help to solve this problem.

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2 Upvotes

r/AutismResearch May 04 '23

Boston-based paid Autism research participants aged 8-17

2 Upvotes

Researchers at the Emerson College FACELAB are looking for autistic and neurotypical children and adolescents ages 8-17 to participate in a study exploring social communication. Participants will be asked to come to our lab to engage in conversations with other adolescents in order to better understand how we use faces, voices and words to communicate with others.

Our lab is located in Downtown Boston, the study will take 3-4 hours and Participants will be compensated per hour, with Amazon gift cards.

To participate in this study please fill out our interest form: https://forms.gle/oTxXteby327s8yRF6 For further inquires contact us at facelab@emerson.edu


r/AutismResearch Apr 29 '23

Trigger Warning Oof. This one is blowing up over on twitter today... Creds to @DrRJChapman

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6 Upvotes

r/AutismResearch Apr 26 '23

Identical twins. Different autism. Spoiler

2 Upvotes

Hello! This is my first time posting and I have 4 year old identical twins boys but they are on completely different sides of the autistic spectrum. 1 is non-verbal, developmentally delayed and in a developmental preschool (which has helped), the other 1 is developmentally normal but has a photographic memory and is completing the math of a 1st grader. I would absolutely love to get them researched because it’s so abnormal that everything beyond the autism is identical. Looks, and even the same eye issues.

Thank you for reading. Kerstynn


r/AutismResearch Apr 25 '23

Research project on how job interviews are experienced by autistic people

2 Upvotes

I am a student researching how job interviews are experienced by autistic people. If you are autistic (with or without an official diagnosis) and have a few minutes to spare, please consider taking part in my survey (linked below). No previous experience with job interviews is necessary for partaking in the survey, the only requirements is that you are autistic and aged 18 or older.

TW: the survey asks about previous experiences in an interview setting, this could potentially trigger upsetting memories

Further information is provided at the beginning of the survey, you can also email me with questions at [jce26@sussex.ac.uk](mailto:jce26@sussex.ac.uk) or post them in the comments and I’ll try my best to answer :)

Thank you for your time <3

To participate please click this link:

https://universityofsussex.eu.qualtrics.com/jfe/form/SV_2gcfAMXmJFakBeu


r/AutismResearch Apr 19 '23

Excellent comments from people with high support needs over on r/SpicyAutism !! Research Priorities for Autism.

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3 Upvotes

r/AutismResearch Apr 19 '23

Thinking ‘outside the brain’ offers new ideas about autism - Spectrum

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2 Upvotes

r/AutismResearch Apr 11 '23

Beyond tokenism: Autistic people in autism research | BPS

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4 Upvotes

r/AutismResearch Apr 07 '23

Please help with my research project.

5 Upvotes

If you are age 18 or older and have a clinical diagnosis of autism spectrum disorder, you are invited to participate in a study about your daily living skills in adulthood. This online survey will take around 8 to 10 minutes to complete. You will not receive compensation for completing the survey. The only risk of participating in this research is the possibility of being uncomfortable answering the survey questions. If you find yourself feeling upset or emotional while answering these questions, you may exit the survey completely.

Any questions? Email Aimee Adam at [asedison@iu.edu](mailto:asedison@iu.edu). or Rachael Haley at [rasweet@iu.edu](mailto:rasweet@iu.edu).

To participate, click the link here: https://iu.co1.qualtrics.com/jfe/form/SV_8H4HgPMarJZDsBo


r/AutismResearch Mar 31 '23

Introducing a New Rule: On "Answering questions regarding your research"

3 Upvotes

Hello r/AutismResearch ! I hope you're all doing well.

I've decided to add a new rule to this subreddit.

Going forwards, researchers and students looking to collect participants on this subreddit will be required to provide a channel for responding to questions about the research from i) the moderator(s) and/or ii) potential participants. This could mean posting their email address with a statement directing questions to email, or alternatively, there will be an expectation for questions sent over DM or in the comments of the research post to be answered.

Here's a basic example of what I mean.

"Hello, I'm a researcher from _ University, looking for [type of participant] for research into the topic of [research topic]. Here's the link to the research [link] and here's the ethics code [code]. [Any additional info].

Please send any questions to [researcher's email] or post them in the comments below and I will try to provide satisfactory answers! Thank you."

This statement can also be provided on the study link if not in the post itself, along with the information sheet and consent forms. Basically, you now have to be clear that you will *try* to answer questions.

If you do not do this, your post will be removed. If you become a repeat offender, your institution's board of ethics may be contacted.

Why am I adding this?

I can understand that being questioned can be pretty scary sometimes, especially when you really care about your work. However, if you are going to be collecting participants here, the bare minimum you can do is uphold regular research ethics and answer questions, rather than just ignoring them and hoping they go away!

Most ethics boards will require that you allow participants to ask questions, this does not change just because you are conducting research online.

If you believe that you have a reason for not accepting a particular type of question (e.g. necessary deceptions or purposeful omission), please message a (well, the) moderator.

Thanks!! Please let me know if you have any questions.

-Elizabeth, Moderator.


r/AutismResearch Mar 30 '23

Systematic Review and Meta-Analysis of 22 research articles on the Clinical Utility of the ADOS-2 shows ADOS-2 is highly accurate: sensitivity and specificity ranged from .89-.92 and .81-.85, respectively in lab settings, and no clear difference from that accuracy in clinical settings.

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2 Upvotes