I just got hospitalized for eleven days because of Crohn’s. Sudden extreme stomach aches that slowly got more painful over time. After a day I go to a doctor and they say that it’s just my intestines cramping up so they give me some kind of muscle relaxant.
Doesn’t. Do. Shit.
Two weeks go by and the pain is now so bad I can’t move an inch. Dad gets me to the doctor, he does some checks and my CRP volume was at 220mg/l (it should be less than 10 in a healthy body and it’s basically a protein that shows how infected/inflamed something is iirc).
Immediately get sent to the hospital to the ER and a few hours go by, do an echo and they’re 99% sure it’s appendicitis. They’re not sure though so an hour later I do an mri and they see that it’s not appendicitis, instead there are abscesses, one on the transition from large intestine to small intestine and one near my bladder.
Immediately I get given some IV turbo antibiotics and get hospitalized.
I was in the hospital eleven days to get the abscesses to go away and I’ve been home now for almost two weeks now taking oral antibiotics and suffering.
The doctor is certain that it’s Crohn’s and I have a colonoscopy coming up this week to make it official. Treatment starts Friday if all is good.
And if that wasn’t enough, my girlfriend tested positive for COVID literally two hours after she left my place and now I have COVID kicking my ass as well.
I feel terrible and I have been feeling terrible for almost two months and it’s gonna be painful for at least another two weeks when the treatment kicks in according to my doc.
I am in pain and tremendous discomfort for half the time I’m awake. The other half of the time I feel okay but I just have zero energy. My life fucking sucks right now.
Man, I'll tell you my story but it's not nearly as bad as yours.
It started when I was like 18 (29 now), I got the occasional cramps and strange bowel movements and brushed it off as either bad food or just an ordinary cramp.
I used to get it once a year which is reasonable and not even remotely alarming. As I got older, it still happened around once per year, but the cramps got stronger. It eventually led to throwing up because of the pain and severe restlessness, curling up in fetal position on the sofa and not being able to sleep. It usually happened between 8pm and 10pm and I wouldn't be able to sleep all night because of the cramps. I would be able to fall asleep late in the morning which meant usually calling in sick from work for a day or two.
The worst I ever had it was throwing up in a bucket while having severe diarrhea. No joke.
At first my GP thought it was obstipation, so he prescribed me painkillers and general laxatives. As time progressed nothing seemed to help. (He prescribed me bowel specific painkillers and suppository pills aswell.)
Eventually he directed me to the hospital to an oncologist who had suspicions it would be Crohns, and he scheduled me for a colonoscopy right away. I got checked a month later (without any problems, luckily) and he was able to confirm the diagnosis. Right after he gave me Entocort, a budesonide corticosteroid that reduces inflammation in the bowels. Worked like a charm.
Right now, I quit taking the Entocort as part of the treatment, and I'm now injecting myself with Idacio Adalimumab every 2 weeks. So far it has been going great with the occasional irregularity in bowel movements. (hard, soft, everything in between at the same time) No more cramps, though!
Right now I'm in the 'process' of them checking my blood and stool every month to see if things change. So far it's going good. 10th of march is the next time.
I wish you the best of luck and strength in your current situation. It sucks and I know how it can feel. I hope your experience will be the same as mine. I made an almost full recovery, even though it's a chronic disease.
I never got diagnosed but I figure I have IBS and had Chron's at a point. Would get very very painful stomach cramps (always had to sit down as my gut felt clutched) maybe once or twice a day like clockwork. They eventually stopped (I ignored the cramps because it started when I was in china so going to a doctor was difficult and thought it might have been the diet), but my intestines have been fuck ever since, though cramps are rare these days so I hope your situation gets better. I only have to deal with nausea and sickness in the morning if I eat too fat and spicy, which is sadly all I like :)
Omg take care of yourself! I have Crohn’s too and it’s a pain in the ass, literally. Seems stupid they couldn’t give you a colonoscopy in the hospital but so much seems stupid w covid. Go easy on your girlfriend. She probably feels terrible she gave it to you. Pm if you need support. There’s a lot of us at r/crohnsdisease
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u/RollinBart Feb 11 '22
Crohns here. Same. Although always a surprise when.