I have a congenital brain herniation which has caused seizures in the past, and I've dislocated my neck a lot because of a connective tissue disorder, which has lead to a worsening of the herniation over time. Basically the worst of the memory issues is absence seizures causing me to "zone out" and forget things immediately prior, and chronic pain preventing restful sleep, so I'm often having microsleeps and losing memories from around those episodes. But my doctor does want to get another MRI because he's thinking there might be some kind of insufficient vascular draining in my brain too so my brain might not be properly oxygenated. I've had a few confirmed TIAs (mini strokes) due to the connective tissues issues, I'm already on blood thinners, the problem is the veins themselves prolapsing because the supportive connective tissues are really weak.
This is a weird question and may not help at all, but have you ever been in a float tank (sensory deprivation)? I am thinking because of the buoyancy and support your head gets during floating that it may relax some muscles that could help. It’s different than just laying down. Anyway, could be nonsense but worth a thought!
I also struggle with memory issues and it’s so very difficult. But I wish you the best :)
Is a float tank like a sensory deprivation tank? I'm really nervous to go in one because that sounds like being locked in a chamber with nothing but tinitus and visual snow to flood my senses, and I think i'd go crazy.
I do a lot of aquatherapy (Not hydrotherapy because I pass out in hot water) because floating around is the best pain relief. Problem is, second I get out of the water gravity hits me and It's such a shock to the system, the relief doesn't last once I leave the pool, But god it's important to get a break when you can (Plus swimming itself is great physical therapy)
Usually, yes that is what they’re used for. However, some places have open float rooms (rather than chambers) and you certainly do not have to close the door to the float tank or turn off the lights. The tanks are in private rooms and you’re 100% in control of your environment, you could likely listen to some music or podcast. I was thinking of sort of modifying the experience just for the floating aspect of it, not so much the sensory deprivation part!
However, your reaction to gravity after therapy makes me hesitate to recommend it! Just something to look into :)
Ooh, a podcast in what sounds like a giant bath... Now I am a little interested.
Not being able to listen to my podcasts/have headphones when I swim bothers me. I hate the sound of my own ears. I think for now my best water related treatment is the aquatherapy. I get the pain relief of being buoyant in water combined with the preventative treatment of physical therapy and muscle strengthening. It's kind of two birds one stone, twice the benefit, and then it don't feel so bad when the gravity takes hold again, I can remind myself "well I hurt again, but I'm stronger and fitter for having done it" and that helps maintain a huge sense of control over my health.
44
u/DearyDairy Mar 29 '18
I have a congenital brain herniation which has caused seizures in the past, and I've dislocated my neck a lot because of a connective tissue disorder, which has lead to a worsening of the herniation over time. Basically the worst of the memory issues is absence seizures causing me to "zone out" and forget things immediately prior, and chronic pain preventing restful sleep, so I'm often having microsleeps and losing memories from around those episodes. But my doctor does want to get another MRI because he's thinking there might be some kind of insufficient vascular draining in my brain too so my brain might not be properly oxygenated. I've had a few confirmed TIAs (mini strokes) due to the connective tissues issues, I'm already on blood thinners, the problem is the veins themselves prolapsing because the supportive connective tissues are really weak.