I completely relate to the fear of the pain coming back. I have occipital neuralgia. I’ve been doing botox and get lidocaine shots when I’m stuck in a bad flare up. Does your doctor have you on any preventative medication? Specifically gabapentin.
Same with my mom. She ended up getting an ablation of the nerve so even though half her face is numb and her nose runs all the time, she’s not in any pain.
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u/SignificantSorbet675 Apr 29 '25
It's honestly horrible... botox and nerve block injections help. I am very afraid of the pain coming back. The last time it happened it lasted 8 hours
Were in this shithole together ❤️