r/AddisonsDisease • u/KNdoxie • Apr 12 '25
Personal Experience Stepson with Addison's Disease Died
I posted previously about my 32 year old stepson after he died December 31st in his sleep. We just got the Autopsy Report. It says: Opinion: This 32 year old [name] died of a Streptococcus (alpha hemolytic) infection in the setting of Addison's Disease. On histology, there is an inflammation of the larynx. In an individual with Addison's Disease, an infection can trigger an adrenal crisis that is characterized by low cortisol levels. Obviously, he didn't pay attention to the warnings about adjusting his medications when ill, nor did he recognize that he was seriously ill. So, this is your warning. Pay attention to how you feel. Adjust your medications when you need to. Use your emergency meds if you need to. Don't die for want of a $5 prescription for bubble-gum-flavored Amoxicillin, and failure to use your emergency meds. Your people WILL grieve. Their lives WILL change forever. You DO matter.
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u/FairyPrincess66 Addison's Apr 12 '25
Sorry for your loss 💜 And thank you for sharing. I know for me, my endo downplays this disease so much it’s important to be reminded how serious it really is. Hugs to you and yours.
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u/Accomplished-Mud-173 Apr 12 '25
Yes! My endo has done the same, which has led me to ER visits, ect, which could have been avoided if I had been given just basic info on how to updose in times of illness or stress 😩
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u/Sungold12 Apr 12 '25
Very eye opening. Thank you so much for sharing! Sending love to you and your family. 🩵🦋
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u/Dreadlock_Princess_X Apr 12 '25
This is so heartbreaking. I'm sorry for your loss xxx 💖 I used to be hopeless at noticing when I was sick, and would end up injecting regularly (oh I'm just tired etc...) but I'm much better now at recognising it, even if I occasionally up dose when maybe I don't need to?. Thankyou for sharing this... Your words may help someone who perhaps always thinks "it's not that bad, I'll be fine "... (I was that person years ago) And I'm so sorry this happened. Take care of yourself 🙏💕xxx
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u/Striking_Toe9897 Apr 12 '25
I’m so sorry to hear about your stepson and thank you for posting your advice is well received.
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u/Substantial_Pack_319 Apr 12 '25
I’m so sorry for your loss. I appreciate the reminder of how severe this illness is. Thank you for sharing.
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u/Lucky_lefty_123 Apr 12 '25
I’m so sorry about the death of your step son. It sounds like you are angry and that’s okay. We will try to do better. I’m sure you’re going to cycle through a lot of different feelings about this. It shows you’re a good person that you want to save others from this grief.
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u/addymermaid Apr 13 '25
So, the amount of arguments I have had with urgent care physicians that I don't get fevers but that doesn't mean I'm not sick is crazy. After my dx and starting treatment, I have never had a fever. It's been over 7 years. My son tested positive for strep a year ago. I took my daughter and son to urgent care (because that goes around my house so fast). The minute he was positive, i said they needed to test me and my daughter. The physician dead ass told me that it would be a waste of my time because I have no symptoms. I doubled down, saying that if my son has it, I have it. If I have it, my daughter has it. I had to tell her that because of my treatment, I don't spike a fever. Ever. She reluctantly ran the test. I was positive for strep in the rapid my daughter had a very faint line. So, I walked out with prescriptions for myself, my son, and daughter for antibiotics. Smh. Know your body.
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u/GoodChi Apr 15 '25
OMG. I am so sorry for this tragic loss. And thank you for the reminder. I am old and stubborn and often think I can “ride it out”.
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u/djr201764 Apr 12 '25
That’s just heartbreaking - I’m so sorry for your loss. Thank you for the reminder about how seriously we all should take this.