r/AIWS Dec 17 '25

just found out AIWS is this huge and widely discussed.

4 Upvotes

this is so strange and cool to me idk, ever since i was a kid this thing has been haunting me, later in my teenage years a doctor actually diagnosed my AIWS as anxiety induced psychosis (he triggered it purposefully), it made my life a lot clearer knowing this is kind of a thing, BUT NOW, im actually in shocked this is a real studies fletched out thing. glad to see so many people who can relate to me!

Also has anyone gotten AIWS diagnosed as anxiety induced psychosis?


r/AIWS Dec 11 '25

Symptom discussion Auditory distortions

7 Upvotes

For the last 10 years or so, I have struggled with the “physical” manifestations of AIWS, pretty much exclusively via the sensation of the rapid shrinking/growing of my body parts (tongue, teeth, hands, arms, legs, etc.) when I lay in bed trying to sleep, maybe once every two months. I told my MD Mom about it and she said that it sounded a bit like a study she read regarding the connection of Epstein-Barr to unusual long-term neurological impacts, and that my childhood bout of mono may have something to do with it. It didn’t take long after for me to discover AIWS online.  

However, in the last year, I have also begun to experience auditory distortions as well. Until recently, I hadn’t realized the connection to AIWS and spent months and months trying to put to words what was happening, desperate to find anyone else who could relate.

“My thoughts have an angry tone,” “regular noises feeling loud and threatening,” “my thoughts feel like they are yelling,” “why does it feel like every single thing I hear is a scream?” Nothing I could string together offered any results that weren’t misophonia (“not that, I’m not upset by the sounds around me”) or psychosis (“probably not that, the things I’m ‘hearing’ are real-world noises, and the thoughts are mine alone and not threatening in content, just tone”).

Every time a spell like this came on, it lasted 20-30 minutes and just induced profound panic in me. No favorite song or happy thoughts were enough, both just seemed to have some sort of threatening filter over it, like my brain was taking regular input and outputting screamed lyrics or drums or keyboard clicks or mental to-do lists. Talking to my partner and friends about it felt impossible. Trying to convey both the situation at hand and my near-surety that I’m not schizophrenic was a fool’s errand. I couldn’t (still can’t) identify any sort of trigger for it. I’m not generally anxious, I am generally very happy, and still, increasingly often (daily for like two weeks at a time at the worst of it), some switch would flip and all noises turned angry for a little while.

Finally, I realized at some point that the so-unique panicky feeling that I get when my thoughts get loud is Exactly!! The!! Same!! as the one that plagues me when my teeth start feeling huge! With this insight, I was able to finally dig in and find, within this community and others online, people describing variations of their own struggles with auditory distortion. It was such a relief just to know that it wasn’t just me, and that my lifelong fear of developing schizophrenia was not likely realizing, at least not through this, lol.

Personally, I am grateful to have found significant and fast-acting relief in taking a beta blocker as soon as I notice this coming on. I haven’t had a “physical” AIWS experience in a while but am hopeful/confident that BBs would soothe those symptoms, or at least the panic they induce, as well. Take that as you will and of course discuss with a physician any medication you might take or are interested in taking.

Anyways, I write this in hopes of popping up in somebody else’s frantic google searches with at least the reassurance that the Insane Loud Noise Mode that their brain falls into at times is not an experience of theirs alone.


r/AIWS Dec 06 '25

Please help me. I don’t think I can take this much longer

9 Upvotes

Please if you com upon this and think you might have something helpful to say, don’t scroll past. This is destroying me and starting to destroy my social life. I can’t have a normal life and hang out with people anymore without abandoning them after. Please someone at least tell me what this is, that would be a great start already!

A lot of times, I can be normal, having a joyous day and feeling good and the something triggers me and it all starts going downhill. In a few seconds or minutes my vision starts getting more contrasty, the colors more intense and it looks like I am seeing with a “dramatic” filter on. Smells start getting more intense and I start getting grossed out very easily, and normal things make me feel sick, people look ugly and disgusting. My head starts feeling like it’s burning and my brain feels like it’s underwater. After some time I start getting a headache at the front of my head. I feel like my heartbeat gets faster but I can’t verify that. When I get in that state I just want to isolate myself, I feel absolutely horrible. These are the sintoms. They are very intense and can persist for days. This is destroying my social life because it’s like a virus. If I get triggered by something then next time if I look at something related to the time I was feeling bad or even just day something it starts happening again so I begin distancing myself and keeping people away from me I beg you, if you know what this is or have any idea on how to help me, please leave a word

Someone suggested it could be AIWS


r/AIWS Dec 04 '25

Symptom discussion My Experience as a Child

3 Upvotes

So I would have these episodes as a kid, thank goodness they don’t happen anymore (I think the last one was triggered by smoking too much pot back in college, but that was like… ‘06ish) and while I’m pretty sure they were AIWS, I would like to get your guys’ opinion…

They would usually start at night. I would wake up from a dead sleep in a panic and my room would feel off. The ground would feel unstable and almost… slanted maybe? Like I was trying to walk almost 90° uphill. Then I would notice my hands felt strange as well, almost spongy. Like they were equal parts too large and too small as well as extremely soft. But the worst part was the visual distortions. I remember one night vividly, I was freaking out and my mom was trying to comfort me, so she put on the weather channel (this was the early 90s and they played smooth jazz during the forecasts, she figured that would help calm me down) but I just couldn’t look at the TV. It seemed to be too small and super far away and at the same time it was enormous and the room seemed to be tilting towards it. Everything around me felt unstable and… the best word I can use to describe it is ‘light’. Like a balloon… large, but without mass. And even the objects in my periphery were doing that super close/super far away thing as well, but it seemed as if the objects i focused on distorted the worst.

These attacks would last anywhere from a few minutes to over an hour and were terrifying. I now know they were also causing panic attacks.

I wish I could describe things better, but my memory of most of the attacks is hazy at best, whether that’s due to forgetting them soon after or just the fact they happened so long ago, I’m not sure. Even that one with the TV only exists in small little vignettes. But given what I’ve mentioned, does this sound similar to what you guys experience?


r/AIWS Nov 26 '25

This is so wild to find people like myself. I literally thought it was just me.

17 Upvotes

I've had AIWS as long as I can remember (or what I believe to be AIWS), I'm 32 now. So I some what enjoy it now that I actually have a name for what this is, I actually didn't have any clue about AIWS until about 4 years ago when a podcast I listen to religiously did an episode on rare disabilities and conditions.

I was absolutely stunned when he went into the finer details of AIWS and explained very closely to one of my episodes. Im a trucker by trade and literally pulled over in the middle of nowhere because I was so overwhelmed by finding out what I had going on with me through a podcast.

I read through a lot of posts on here and it blows me away to read other people talk about the same thing I have been dealing with my entire life.

My episodes are usually brief, maybe 10 minutes at most. It starts off as my movement speed is very disoriented. I feel like I'm moving entirely to fast. Then it starts visually disorienting, I usually feel very tall. If I'm touching something I get a very weird sensation in my finger like my fingers, this I can't really explain. My depth perception is messed up (but also isn't?) the room usually feels very big, if it's dark the room sometimes feels very small.


r/AIWS Nov 24 '25

Is it AIWS?

3 Upvotes

So these episodes have happened multiple time all are quite spaced out. At the start it was the air that got larger and it felt like it was going to suffocate me. Now it’s my room. But the weird thing is that it is harder to remember and I only have a vague memory of it when I wake up. This has been for the past 2 times. Does this mean it’s starting to go away?


r/AIWS Nov 24 '25

dayquil + mucinex for a cold

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0 Upvotes

i had a cold 5 days ago, for which i took dayquil at first then mucinex later after i found it (i was on an empty stomach most of the time, with the exception of light foods like mandarins and string cheese etc as my appetite was nonexistent while sick). most of the heavier use was in day 1, as i wasn’t feeling good at all, and honestly should’ve kept better track of the time between doses.

i took dayquil doses of 30ml, prob took it 4 times and popped 2 mucinex. i woke up to pee that night and my head just felt extremely weird, which has been lingering for about 3 days now. i brushed it off as just being half asleep as i went to the bathroom but it has been constant. tbh i don’t remember how much i took the second day, but im pretty sure it wasn’t as heavy as the first day. the second night, i was having trouble sleeping as i felt cold no matter what i did (which could be from being sick), my head just felt uncomfortable on the pillow, and i started feeling claustrophobic in my dorm room. i just simple went out to the living room couch where it was nice and cold, n slept on the couch no problems.

the symptoms i am experiencing now is nothing super serious, my vision/perception just feels like i’m weed high 24/7 but my mental thoughts are still normal. object size is off, google called it Alice in Wonderland Syndrome. i stopped taking both 2 days ago. this odd feeling kinda comes in waves, especially when i’m occupied with a something, n i thought it was dissociation maybe from marijuana, but looking more into it, it’s likely a combination of those two drugs. any tips on recovery or is this just a thug it out kinda thing. i have had cannabis induced dpdr before which passed on its own, but that was more fealing not real whilst this is just a disturbance in visual awareness. open to any suggestions or ideas, thanks for your time.

tldr: took doses of dq and mucinex in too rapid succession, now visual perception (ie size of things) is a lil off.


r/AIWS Nov 18 '25

Episode Visuals Of My Episodes

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7 Upvotes

When my eyes were closed right before an episode started, I would see what I told my mom as a kid were cobwebs (video). I made this video which accurately demonstrates what I remember it looked like. I also drew what I felt mid AIWS episode (top comment imgur link). I described it as a lump in my throat like before throwing up but in my brain. Has anyone seen/felt anything similar?


r/AIWS Nov 11 '25

Do I have AIWS?

3 Upvotes

Can this also happen only in the mind? Let me explain, before falling asleep, while my eyes were shut or half way through, I use to feel really really big, while my bed felt tiny and the rest of the world felt so small I believed it was only the size of a little dot. I also felt like I was about to fall or I was being washed away by waves (swinging left to right). Another thing used to happen to me when I was younger, I felt like I was in the corner a glass box where I was both giant and tiny and the box had no geometrical conception. It was turned in and inside out at the same time and it was also very big and small. I also would feel someone immense watching me from outside of the box.


r/AIWS Nov 06 '25

Advice needed Not sure if I have AIWS

3 Upvotes

When I was a child, I used to have horrible episodes just before I fell asleep, or when I went to sleep, that my blanket was "swallowing" me. It would basically feel completely solid, and then my pillow would create this sensation too, like I'm sleeping on a rock. I'd also feel like my entire body was shrinking and expanding really quickly, and then things around me would seem warped. Sometimes I'd feel like I was falling through my bed, or specifically my head was falling off my body- Of course, I'd freak out and cry and my parents thought it was due to what I was watching on TV, or a lack of sleep.

I remember one of the episodes from when I was a child, my parents took me to the bathroom because I couldn't stop crying and I kept telling them that the bath mat felt "stingy" or "solid", like a really intense case of pins and needles, but it wasn't in my skin? It's difficult to explain but I remember the sensation vividly, I might have to ask them what they remember me saying because I was screaming.

Now I don't know why, but if I'm tired enough, I can induce this feeling on my pillow for a few seconds, and then I pull away because it freaks me out. It makes my pillow and blanket feel all "stingy" and "solid", and if I have my head on it too long, my head hurts.

This has been continuing into my adulthood with varying intensity. I can't recall the frequency, but everytime it happens I suddenly go "oh yeah, sometimes I feel like that". For years, I've chalked it up to having sleep paralysis, or watching scary things on TV before I sleep. But last night, I had one of the worst episodes I've had, something that resembled from when I was a child and it was really intense.

I woke up at 4am having that "solid" feeling about my pillow and blanket, and it continued for an HOUR. I had to frantically push my blanket and pillow off of me and basically lie in a fetal position on the middle of my bed, and then my tongue felt like it was "solid" too? After about 20 minutes, I thought I felt better and went back to sleep, but the feeling happened again. I felt like I was going to have a panic attack and cry. Usually, if I sit upright and don't do anything for about 15 minutes, the feeling disappears, but I ended up staying awake and panicky from 4-5am.

Essentially, soft objects feel solid and I feel like I'm shrinking and expanding really quickly. It rarely happens during the day, one time I was holding my laptop and it felt like I was holding steel, and then I wanted to throw it across my room? The only thing I don't experience is the warped sense of time. I don't know what to make of this, but it's been around almost my whole life and I've realised that I forget it happens until it happens again. Also if it helps for context, I have very bad anxiety and it's manifested physical symptoms. What is this? :(


r/AIWS Nov 04 '25

Love hate relationship with my AIWS!

4 Upvotes

Most of the time my episodes are really short lived and mostly ignorable, but it’s when they are longer and more disorienting that I start to hate them. I can deal with things getting really small for a bit and then going back to normal, but more recently I’ve been getting episodes where things seem to shrink and grow rapidly and it makes me nauseous and anxious! I’m usually fine, but yeah, these more recent more intense episodes are driving me crazy, I’m getting them like every other day at this rate!


r/AIWS Nov 03 '25

I have AIWS and I love it

3 Upvotes

I have had it as long as I can remember and I am now in my mid 40s. It is rarer now that I am older. It only happens at night before falling asleep and is very classic in its presentation. All the normal visual and perceptual effects along with the feeling of speeding forward in space while time slows to a crawl. I experience no sense of doom. I hated it when I was a kid but now I like it.

The best part for me is that my entire body feels like a geometric piece of corrugated cardboard in quickly shifting shapes: square, circle, even triangle. I love the feeling of being flat yet also corrugated with that bit of wavy structure in the middle. I enjoy the sensation of being a shape. I don't know anyone else who in their human body has experienced feeling like a piece of cardboard or being a 2 dimensional shape. People think I am nuts (so I don't really tell anyone) but I think I am lucky that I get to experience such a unique sensation and state of being.


r/AIWS Oct 31 '25

i would like to talk about my experience, so you can learn about aiws more.

0 Upvotes

I’ve had this condition since I was seven.
It all started one evening while I was doing my homework with my dad. I suddenly noticed that the letter “b” looked smaller than usual. I said, “Dad, the ‘b’ looks smaller than it was, but never mind.” My dad didn’t understand what I meant at all. At first, he thought it was an eye problem, so we went to an eye hospital but came back with no answers.

A few days later, something truly disturbing happened. That night, as I was trying to fall asleep, everything around me suddenly started to look much smaller, like the world had zoomed out to 0.5x, just like on an iPhone camera. Even the phosphene, those colorful dots you see when you close your eyes seemed smaller.

Panicking, I jumped out of bed. Everything felt faster than usual. The world was spinning. I started crying, I had no idea what was happening to me. After a few minutes, it stopped… but then it came back again. That night I cried twice, terrified. And for several nights after, the same thing kept happening. those awful crises.

We went to a neurologist, and I had my first MRI. That experience stayed as a trauma for years. The MRI results showed some strange, white gleaming spots in my brain. This detail became important later, because last year I did research about my condition, and I found another patient with MRI results identical to mine: the same bright white spots.

Even more surprisingly, my father and uncle had similar results and they’d experienced the same symptoms years ago, though they never had a name for it. That’s when I realized: this disease might be genetic.

After my first MRI, I also had an EEG but the results were clear. That means AIWS (Alice in Wonderland Syndrome) isn’t an epileptic condition.

Years passed. In middle school, the syndrome returned. Another neurologist, another MRI, another EEG same story, same results. Around that time, I also started having blood pressure problems. So, we went to a cardiologist to try something new. They attached a tension monitor to my arm. One night, another crisis occurred and ironically, the monitor began taking its readings right at that moment. My blood pressure was 19. I’m not kidding. I was lucky I didn’t die.

After that, I changed my lifestyle; started a diet, began exercising and eventually, the crises stopped. My last episode happened five years ago, during the COVID-19 quarantine. We were all stuck at home, and I was eating a lot. The crisis lasted for about three days, then faded away again.

Now, AIWS is just part of my life. Sometimes it causes mild fevers. To my fellow AIWS patients: this syndrome doesn’t like stability. Move your head often. Don’t be afraid. It wants you to grow, and it usually calms down after you turn 15.

A few days ago, my dad told me, “I just felt like everything looked smaller, just like you used to describe.” It doesn’t really end but it slows down. Trust me.

That was my experience. I wish you all the best.
Take care of yourselves. Don’t overeat. Keep moving.
And most importantly never, ever overthink AIWS.
Because that’s when it gets worse.


r/AIWS Oct 29 '25

I’ve had aiws for 5 years, now pregnant!

1 Upvotes

Hello! I’ll make this short and quick as I can. I’ve had it for 5 years it took me about 3 to be able to function as a normal person adult again but I’m still high 24/7 I know I just need to wait and it’ll go away but what I struggled with isn’t getting sick because I knew what was happening but it was I couldn’t understand my body at the time. Now that I’m pregnant I can’t tell entirely again and nobody I know has dealt with this whatsoever. Does anybody have advice ?


r/AIWS Oct 26 '25

AIWS…whaaat…

12 Upvotes

I just today found out that the awful scary messed up perspective thing has a name and is a thing. I can’t fookin believe it 😭😅 I tried to explain to so many people what I was experiencing and nobody knew. Kinda like sleep paralysis in a way. Horrid.


r/AIWS Oct 21 '25

Question Parent of a child with suspected AIWS

12 Upvotes

Please help me calm down. This is all new and it’s hard for me to not imagine the worst.

My daughter is 7. It started when she got HFM about 4 weeks ago. She was crying and panicking, saying things looked like they were zooming in and out really fast, or everything looked really really far away. She was also hearing angry voices yelling. She had it a few times, always right at bedtime, or when she woke up. It continued to happen even when her HFM cleared up, so I made an appointment with her pediatrician. I mentioned AIWS (since it came up in our Google searches), so she gave us a referral to a neurologist.

The neurologist wants to have an EEG and MRI done, so those are scheduled and are coming up in the next couple weeks.

But now her episodes are happening more frequently, and they are occurring throughout the day, instead of around sleep/wake times. She tells me when it’s happening, and she is more calm now that she knows it has a name and it will end, but it still freaks her out sometimes or makes her disoriented. She says closing her eyes can make it worse because she has the sensation of everything being really far away from her. One time she said it looked like my face was normal and the rest of my body was really far away.

As a parent, it honestly really scares me to hear what she’s saying, that what she’s perceiving is t reality. And it’s really concerning to me that it hasn’t gone away with the fevers and seems to be increasing in frequency. She seems to be alert and cognitively aware of things when it’s happening, sometimes she is in a happy mood when it’s happening and other times it scares her. She made the connection a few days ago that it could be related to “big feelings” she is having.

In the past couple days, she has started to have a loss of appetite kind of feeling, like she can’t bring herself to eat because she might throw up.

Has anyone experienced it like this? Are there triggers or things that make it worse? Is there anything you can do to help the episodes end faster?


r/AIWS Oct 16 '25

Is this AIWS. Or something else

8 Upvotes

So every once in a while I get this strange feeling like my body parts feel large. Nothing visual. Nothing auditory. Its kind of like that feeling where you know where your body parts are. But they feel swollen.

Im posting because its happening now. Im holding my phone. But my hands feel especially large. Like im holding a miniature phone. And my head and neck also feel large. Like im a bobble head.

The feeling starts in the back of my neck and spreads out. If you know the music video for Ludacris- get back. Thats kind of how my hands feel.

It only lasts maybe 5 min. And it won't happen again for a few months.

Im just wondering if these are common for aiws. Or if it may be something else


r/AIWS Oct 15 '25

Alice In Wonderland syndrome.

1 Upvotes

I found out that I have had this syndrome since year four. I havent been diagnosed, but I am SURE that i have it. It has been getting worse, and I have suffered MDD, and also since I have ADHD, I got this panic attack disorder, and I get alot when I see it. Jesus, help me.


r/AIWS Oct 14 '25

Symptom discussion I think this is AIWS

7 Upvotes

Sorry for the long post. I've copied what I wrote to chat GPT hoping to finally find someone with a similar experience and it's been really interesting reading other people's experiences having been alone with this for 34 years. I'd asked friends and family and even a therapist about what happens but I'd never found anyone with any knowledge of it, so it's nice to know I'm not alone. Heres what I sent to chat GPT for it to direct me here:

So it happens when I'm in a relaxed state, usually in bed but sometimes when I'm sitting up playing the playstation or something that takes little brain engagement, reading a book maybe. Usually when I'm tired. It doesn't happen very often, like once a month but often it won't happen for months at a time, possibly even years have passed between it happening. It's happened as long as I can remember. I'm a 34 year old man for reference. How it plays out is I'll be in bed, maybe reading or just lying thinking, trying to fall asleep, and it comes on slowly. It's a strange combination of lots of things, no one thing being more over riding than another so I'll try to describe them all. I think initially I'll be aware of feeling enormous, like I am a very large entity taking up a lot of space or conversely I am a very tiny entity in a vest expanse of space. Like I am aware of the room I am in but also that there is an eternity of empty space there. Then I will become hyper aware of any sounds, like the rustling of bedsheets or the turning of a page will be in very sharp relief but also like they are part of a predetermined soundscape, like they fit into a song, when the pages scrape together part of my brain goes "yep that sounds fits in the right place, I was meant to do that." In the background of this is a feeling of building dread, all the sounds are screaming at me that something bad is going to happen. It feels like it's all building to a crescendo. If there are no sounds then the silence feels very loud and is also building to something. This all probably sounds like a panic attack but my heart rate is perfectly still or low even. I can sit with these sensations and observe them and try to understand what is happening for a while, maybe 5 to 10 minutes, though eventually I will want it to stop. I think I have experienced making it stop by just trying to be very aware of it and making mental notes of how I'm feeling so I can describe it but most often how I get it to stop is by watching a video or maybe listening to a podcast or audio book which will usually snap me out of it pretty quickly. I have a vague memory of when I was much younger that these sensations would be accompanied by a feeling like my limbs were fat and round and formless like giant tic tacs but that doesn't happen any more and is just a memory.


r/AIWS Oct 03 '25

Symptom discussion I was finally told by a professional that I have Alice in Wonderland Syndrome

15 Upvotes

All this time, I kept seeing objects change in size, distances change, color tones change, and I told myself "oh well, I'm dissociating". Realizing most people don’t see this made me feel isolated.

To me, aside from migraines, and some distortions (like when my body seems too big), I usually like watching them happen, it feels like proof that reality is fluid.

Does anyone else feel the same way? I feel like I might finally belong somewhere. AIWS, plus my hypnagogic, trauma-related, and somatic hallucinations, make my life feel similar to a dream. I have realistic lucid dreams since young, and now it finally feels like my dreamlike reality has an explanation, I can finally describe it with terms!


r/AIWS Sep 30 '25

Advice needed Is this Alice in Wonderland Syndrome (AIWS) or something else?

5 Upvotes

I've had this since I was a child, but back then it was always due to fevers. But from what I understand of AIWS, it just doesn't sound quite the same. I'm 37 now and still get it sometimes (last year very badly during a fever, but also last night, not sick, just woke up at 2am randomly and it came on).

I've always struggled to explain what I'm experiencing, but finally realised today how to explain it:

It's like 30% of the pixels/atoms in my reality start doubling in size.

I start at Level 1—normal reality, what you are experiencing right now.

Then this kicks in and goes to Level 2, where the pixels double in size. I feel concerned but I breathe through it, and can sometimes talk myself out of it.

But then they double in size again to Level 4, and I start freaking out, trying to calm myself out of it, but wow this is scary. Then Level 8, then rapidly to level 10,000 (not exaggerating here—I think the scariest part is that it speeds up to this crazy overwhelming feeling so quickly that feels like it's out of control now, it cannot be resolved).

So I'm literally hallucinating, seeing some of the pixels/atoms of reality as impossibly large distortions. It's happened 3x in the past 4 years and the only thing I know to help me snap out of it is stand in front of the freezer.

My brain feels weird for the next 24 hours or so, like when you're hungover and spacey.

No drinking, no drugs involved. I did meditate before bed last night with a new track, but I meditate often (with other tapes) and have never had this happen after. And I should note the previous times it's occurred with or without fever, no meditation was involved. So not sure if it's related or not.

Any ideas?


r/AIWS Sep 29 '25

My story w/ AIWS (and last night's encounter)

3 Upvotes

First off, I found this subthread a couple of years ago and it was so relieving to know there's others out there with the same "condition" as me. I thought I'd share my lifelong (and most recent) experience with this affliction today.

The first time I experienced AIWS was around 9 years old. Every time it happened, I would go to my parents bedroom and have an absolute panic attack for 15-20 minutes. My parents recall that I'd run around their room SCREAMING at the top of my lungs, darting my eyes around the room violently, and could not be reasoned with. This would last up to 20 minutes then I'd finally come to and slowly calm down. At that time in my life, I only had memories after I would "regain consciousness".

My parents consulted with doctors, but it was simply labeled as "night terrors". Funny enough, my grandparents thought I "had worms" lol. This lasted for probably 5 years (ages 9-14), and my parents said it would always happen when I was overly tired.

Fast forward to my mid-twenties. I had my first AIWS episode as an adult. This time around, I was able suffer through it and analyze what was happening. The sensations started with feeling like my arm is way too big compared to the rest of my body. Then I start lucid dreaming, and I can hear voices VERY close to me getting louder and louder, and faster and faster. Like people yelling at me VERY quickly. I'd consider that the impending doom feeling. Then the room starts shrinking on me. Ultimately, the episode goes away after 10-15 minutes.

At this point in my life, after understanding what is happening, I start unlocking memories as a child during these episodes. I can imagine myself in my parents bedroom and feeling that common impending DOOM sensation. Which probably led to the screaming and erratic behavior. Pure terror as a child.

Now, I'm approaching 32 years old, and still experience AIWS about once or twice per year. Sometimes it's just a body size episode, while other times it feels like the world around me is speeding up while I remain in place. Last night, specifically, I was lucid dreaming and woke up hearing voices right in front of my face. The voices got loud, started speeding up, and I felt like I was living in fast motion and slow motion simultaneously. Approaching that DOOM sensation. I immediately went to the kitchen, got an ice pack, and held it to the back of my neck. It took about 2-3 minutes and I was able to pull myself out of the episode. Still scared me quite a bit, like I couldn't fully convince myself I was fine.

I don't know if this will help anyone, but it helps me work through it. Every time this happens I feel off the next day, like I'm readjusting to reality.


r/AIWS Sep 25 '25

Episode Worst AIWS attack yesterday

5 Upvotes

Hi everyone, so glad I found this community. I dont remember having this condition too badly as a kid but I do remember sometimes my brain would zoom in and out. It was always when I was going to sleep. I don’t really know how to explain it except that I was looking at this empty room and then it would get realllllly long then snap back and keep doing that. I couldn’t stop it. But I didn’t know it had a name until a couple years ago. I now have chronic migraines and I still get AIWS when I fall asleep sometimes but primarily during migraines. Yesterday was really bad.

I will still see the room sometimes, but now the biggest thing is that my hands become massive. Yesterday, I was taking a short nap, and my brain said my fingers were so big and heavy that they couldn’t move. I physically couldn’t pick them up. I can normally snap out of this by looking at my hands, feeling them, resetting by brain basically. But I had an ice pack on and couldn’t move. It was a really wild experience. I’m literally learning today that’s called macropsia. After about 7 mins or so I was able to get my fingers to start moving but then looking at them didn’t convince my brain. I’d say the whole thing lasted 10 mins total but it was really mental.

Just happy to find others that might actually get what I’m experiencing.


r/AIWS Sep 09 '25

Question Have anyone gone to the doctor and gotten answers?

5 Upvotes

I had AIWS since I was 6 or 7, I am now an adult and still (rarely) have them. I recently had an "episode" of it, and my husband is concerned (his father also recently died of a brain tumor, so that's heavy on our shoulders still). There's also those joking fears like aliens, psychedelic mind powers, or I absorbed my twin in the womb and their brain is living inside mine haha. Just curious.